York Hull Cystic Fibrosis Partnership privacy notice

Why are we collecting your information?

This Privacy Notice has been written to inform you that York and Scarborough Teaching Hospitals NHS Foundation Trust (the Trust) processes information about you in order to manage The York Hull Cystic Fibrosis Partnership.

Who do we collect your information from?

Much of the information we use will be collected directly from you or your family members. We also use information received from:

GPs
Other NHS bodies
Other Care Providers, such as private sector providers
Ambulance trusts
Local Authorities
Police

Who are we?

The Trust is a ‘Data Controller’, this means that we determine the purposes for which, and the manner in which, your personal data is processed. We have a responsibility to you and your personal data and will only collect and use this in ways which are compliant with data protection legislation.

For the York Hull Cystic Fibrosis Partnership we are in a joint controller arrangement with Hull University Teaching Hospitals NHS Trust. This means that both the organisations determine how your data is used with this shared service.

The Trust has appointed Rebecca Bradley (Head of Information Governance) to be its Data Protection Officer (DPO). The role of the DPO is to ensure that the Trust is compliant with Data Protection legislation and to oversee data protection procedures.

The DPO contact details are:

York and Scarborough Teaching Hospital NHS Foundation Trust
York Hospital
Wigginton Road
York
North Yorkshire
YO31 8HE

yhs-tr.information.governance@nhs.net

What Information are we collecting?

Basic information about you, such as name, address
Health information
NHS number
Ethnicity

What is our lawful basis for processing your information?

Article 6(1)(e) Public Task: the processing is necessary to perform a task in the public interest, or our official functions, which have a clear basis in law.

Article 9(2)(h) Health and Social purposes; Schedule 1, Part 1 (c) medical diagnosis, (d) the provision of health care or treatment, or (f) the management of health care systems or services or social care systems or services.

How long do we keep your information for?

For the purposes of the shared service, we process your data for 2 years.

Your central health record is kept for longer than this and details can be found in our main patient privacy notice.

Who do we share your information with?

The Trusts only share this information between York and Scarborough Teaching Hospitals NHS Foundation Trust and Hull University Teaching Hospitals NHS Trust.

Do we transfer your information outside the UK?

No, your information in managed within UK data centres.

What rights do you have over your data?

Under GDPR data subjects have the following rights in relation to the processing of their personal data:

to be informed about how we process your personal data. This notice fulfils this obligation
to request access to your personal data that we hold, and be provided with a copy of it
to request that your personal data is amended if inaccurate or incomplete
to request that your personal data is erased where there is no compelling reason for its continued processing
to request that the processing of your personal data is restricted
to object to your personal data being processed

If you have any concerns about the way we have handled your personal data or would like any further information, then please contact our DPO on the address provided above. To put in a Subject Access Request please contact:

01904 725680

yhs-tr.subjectaccessrequests@nhs.net

If we cannot resolve your concerns you may also complain to the Information Commissioner’s Office (the Data Protection Regulator) about the way in which the Trust has handled your personal data. You can do so by contacting:

First Contact Team
Information Commissioner’s Office
Wycliffe House Water
Lane Wilmslow
Cheshire
SK9 5AF

casework@ico.org.uk // 0303 123 1113